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2nd time? Scared and Anxious

The various unpleasant manifestations of Helicobacter can be described here. Remember however that the great majority of persons with Hp have no symptoms that they are aware of and consider themselves normal.

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Nickskiyy
Posts: 4
Joined: Thu Oct 14, 2021 6:57 pm

2nd time? Scared and Anxious

Post by Nickskiyy »

Hi all, 32m here from UK. So November last year I woke up through the night with horrific panic attacks, and severe anxiety. This went on for months. I ended up in Jan/Feb getting acid reflux for first time. Then stomach pains. Different doctors, all saying its anxiety etc. One doctor, she listened to me, examined me, and said about HPylori, gave me a sample to do (stool test), and it came back negative (July 2021). I start triple therapy, and although it was grim for the 7 days, I did it, and I have to admit, from July until now, wow it's been fantastic, really felt back to myself and absolutely perfect. Got my life back. Probably for around 10 days now, I've had acid reflux, stomach pains (not always), heart palps, sore throat (acid coming up) and runny nose in mornings. Went to doc today and shes given me a sample again for a retest. Will give this back tomorrow and wait. Basically, I'm terrified. Anything I read about HPylori basically says I'll get cancer and die, or that it's now resistant to antibiotics and I'll die of cancer anyway. I'm scared. My anxiety last year into this year was very health related, probably because I've never experienced anything like this before and had no idea what's happened to my body. I'm a healthy guy so this knocked me. This time around, the scariest bit has been like some pressure/ trapped gas maybe in my chest which makes it hard to breathe, this isnt all the time, but can happen here and there a few hours sometimes, yet some days nothing. I'm fed up playing a guessing game. I'm scared and tired of this. I suppose its impacting my life too, I cant go on dates to find a girl because my stomach feels like a balloon and i feel horrible. Rant over. Just needed to share it. Any happy victory stories or ways you deal with it all is much helpful. Thanks, Nick.

Helico_expert
Site Admin
Posts: 4356
Joined: Wed Mar 02, 2011 7:20 am

Re: 2nd time? Scared and Anxious

Post by Helico_expert »

Hi,

Thanks for sharing your story here. It's weird that your doctor gave you the antibiotic treatment even when you have a negative stool test. Anyway, it's good to hear that you tolerate well with the treatment and have some good experience after that.

So have you tried PPI alone without the antibiotics? perhaps that's all you need for your sudden reflux symptoms.

I know many people with the reflux symptoms without H. pylori. It's hard to explain why they have it. It seems like most of them are triggered by stress. For example, a deadline for a big project, change of life-style, going to give an important speech, put in the centre of attention, etc.

Lastly, you are still very young. Even if you really have H. pylori, your cancer risk is extremely low. it will take decades for the cancer to form. I am Looking forward to seeing your next stool test result. Discuss with your doctor about having just the PPI.

Nickskiyy
Posts: 4
Joined: Thu Oct 14, 2021 6:57 pm

Re: 2nd time? Scared and Anxious

Post by Nickskiyy »

Thanks. Appreciate this. Something I really noticed today as I await on my results... the scariest bit for me is a hard to breathe feeling, its laboured and hurts my shoulders as it's working harder, combined with the fact I have asthma anyway which really worries me, even though my asthma has been seriously mild my whole life. But a few minutes ago I burped and omg it was pure instant heaven, like someone had just got off my chest and throat. Why does H Pylori cause these breathing issues? And why does wind/gas hang around in that area for hours and hours when probably normal people would burp quickly and resolve it. It's like H Pylori won't let wind be released?

Helico_expert
Site Admin
Posts: 4356
Joined: Wed Mar 02, 2011 7:20 am

Re: 2nd time? Scared and Anxious

Post by Helico_expert »

hmm...
H. pylori doesnt usually cause breathing issues. At least not directly.
H. pylori only colonise in the stomach and cause inflammation there.
But the inflammation in the stomach may cause acid reflux and the acid may damage the throat or air way.
As you can see, it's the acid reflux that is causing the problem and acid reflux can happen without H. pylori.

I think it is best you find out if you really have H. pylori, which you probably dont.

Nickskiyy
Posts: 4
Joined: Thu Oct 14, 2021 6:57 pm

Re: 2nd time? Scared and Anxious

Post by Nickskiyy »

Ok, update time.... so I made a mistake in my first post, I tested POSITIVE for Pylori in July 2021...
Secondly, today my doctor has given me a response to my stool sample, and I will give you it word for word because the wording is weird.... "just a message to say your recent test sample has come back all clear, ie it did not grow any hpylori. Please take lansoprazole for a month and try and keep an eye on heartburn triggers. If symptoms dont improve then come back and see me"
So I feel like I should be celebrating but I'm now even more worried, because what is this then that's happening to me? Is it a false negative? Is it just acid reflux causing issues, what??? I'm even more scared

Helico_expert
Site Admin
Posts: 4356
Joined: Wed Mar 02, 2011 7:20 am

Re: 2nd time? Scared and Anxious

Post by Helico_expert »

hmmm.. i dont think they tried growing H. pylori from fecal sample. It's too complicated. Even we dont have success in that.

They most probably did antigen test. Just like COVID19 test. The test will check if there is presence of H. pylori antigen. The accuracy is over 90%. But the test can be affected by PPI. So, to be sure, you should complete the lansoprazole treatment, then stop for at least 2 weeks, then repeat the stool test.

Nickskiyy
Posts: 4
Joined: Thu Oct 14, 2021 6:57 pm

Re: 2nd time? Scared and Anxious

Post by Nickskiyy »

Just thought I'd give an update one month later. So I had a month of Lansoprazole 30mg once a day, and felt fantastic, no issues, only some days of constipation which meant 'pushing' a bit harder. Have now been off the Lansoprazole for 6 days, and no acid issues. I can function normally again each day and even can have the odd drink of alcohol. I am following a low carb keto diet, and I know that this can be a cause, but I have had two episodes of lower abdominal cramps followed by explosive diarrhoea, on the first time i identified that I stupidly had eaten hot and spicy chicken wings earlier that day and that was a big no no. Today I had cramps followed by a normal movement and then a bit of diarrhoea, and the cramps are dull and persistent, although I haven't identified a trigger, could be keto related. From my last post one month ago, I do feel 80% better, however, the pylori episode has left my stomach sensitive to spice and hot foods, and I've been left with a generalised anxiety disorder, especially health anxiety. I am seeking a therapist that specialises in this now. But its good to have a quality of life again, its silly things, I can go out to the cinema or a restaurant with my friends, I can walk into the city and browse the shops, I'm completing lego sets for adults to help my anxiety. I have a life again. I'm not perfect by a long chalk, but its moving slowly in the right direction. I just want people to read this and know it takes alot of time but it will get better. Oh by the way, I've identified what I think has been thrush on my tongue since triple therapy, and I will seek a pharmacy for this as I heard it can cause issues long term? After two weeks off the Lansoprazole, I will get a second check to confirm the pylori is eradicated.

Helico_expert
Site Admin
Posts: 4356
Joined: Wed Mar 02, 2011 7:20 am

Re: 2nd time? Scared and Anxious

Post by Helico_expert »

thanks for the update. Your story is very encouraging.
:)

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